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Alumni Profile Jocelyn Wong

Alumni Profile: Jocelyn Wong, '07

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Morristown, N.J. (January 2, 2019) – Jocelyn Wong, '07, refuses to be limited by her disease. In fact, she believes the reason she was born with Morquio A Syndrome, a rare form of the metabolic disorder mucopolysaccharidoses (MPS), is to raise awareness.

"I am one of only 11 people currently living in New Jersey with Morquio A," explains Jocelyn, who speaks three languages and moved to the United States from Hong Kong before the age of 12.

Aside from weekly four-hour infusions of an enzyme replacement therapy, Jocelyn endures countless testing and sees a litany of doctors (geneticists, orthopedics, cardiologists, pulmonologists, audiologists and more).

Yet, she still finds time to do what she loves – volunteer work.

"With my multicultural background, I have been able to build a bridge between the MPS community and the Asian community," explains Jocelyn.

She translates MPS disease information in medical journals from English to Chinese, counsels Asian families living with MPS disorders and even helped to establish the MPS Rare Diseases Care Center in China. She also attends conferences relating to her disease throughout the United States, China Taiwan, Hong Kong, Australia and Germany.

"I don't want to see anyone walk the road like mine," says Jocelyn. "I was born in Hong Kong and understand that the language barrier makes understanding information about this disease even more difficult. This is why I'm willing to help others."

Jocelyn first became interested in the College of Saint Elizabeth because of its small campus and intimate class size. Her decision was solidified after earning CSE's Genevieve A. Walsh Scholarship.

However, CSE didn't just assist Jocelyn financially. The professors, deans, administration, faculty and staff took a personal interest in her education.

Since Jocelyn is 100 centimeters, or 3.28 feet tall, she required extensive accommodations to live in the residence halls.

In order to assist her, step stools were placed everywhere, including the kitchen and shower. When Jocelyn had to take a leave of absence from her studies due to surgery, Katherine Buck, vice president for student life, redesigned her entire room for easier access. Finally, she credits Dr. Virginia Butera, an art professor at the College, with cultivating her presentation skills and finding study buddies to help her in class.

"The College was extremely accommodating to me and went above and beyond to really make my time there a great experience," says Jocelyn.

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